"Common Variable Immunodeficiency (CVID) is a disorder characterized by low levels of serum immunoglobulins (antibodies) and an increased susceptibility to infections. The exact cause of the low levels of serum immunoglobulins is usually not known. It is a relatively common form of immunodeficiency, hence, the word “common.” The degree and type of deficiency of serum immunoglobulins, and the clinical course, varies from patient to patient, hence, the word “variable.”

Tuesday, May 17, 2011

Why antibiotics are not fun

Well the cold-like illness that I have been struggling with since February is finally starting to ease up. I'm coughing less often, and the coughs sound a lot less like a moderately successful attempt to bring up a lung. I'm also no longer going through a box of tissues a week. Best of all, my ears, which have been constantly plugged, are finally clearing up and I am no longer asking everyone to repeat themselves and watching TV with subtitles. All this is partially due, no doubt, to the IVIG treatment starting to have a gradual effect. It also doesn't hurt that I currently have nothing to do but sleep and relax until I start a summer job.  However, I'm sure the antibiotics my primary doctor prescribed are also playing a large factor. Unfortunately.



As I understand it, one of the problems of having CVID is that when you get sick, you are sick for far longer than a normal person, and you often need a much stronger and prolonged course of treatment. Hence, my family physician prescribed a very strong and apparently rarely used antibiotic to help clear up my ears and sinuses.  I am to take the antibiotics for two weeks, with option to refill for another two weeks if I don't feel like I'm better.  However, since day 2 of being on the antibiotics ended with me incapacitated with indigestion, the worst headache of pain I ever remember experiencing, and vomiting which has left me weak and with a delicate stomach and a slightly less painful headache the day after, I feel disinclined to get a refill. 

On the plus side, I actually managed to hear from my immunologist when I called one of his offices yesterday seeking more information, since I'm currently lost and adrift as to what the next step is. Turns out, as he is a very busy man, he had delegated a number of tasks to other doctors and staff. Thus, someone was supposed to have called me and talked to me about what the IVIG treatments meant, what I could expect, how to prepare, etc. so that I didn't go in uninformed. Apparently said person felt making the arrangements for the treatment was enough. I also learned that I am supposed to get the treatment every four weeks, and that I should have a follow up visit with my immunologist at the end of the month to see how my immunoglobulin levels are doing. 

Now that I know the general lay of the land I feel a lot better. Which, I suppose, is part of the idea behind the phrase "knowledge is power".

No comments:

Post a Comment